Archive for April, 2011

Parkinsons Awareness Event at NBA Pacers Game

Sunday, April 17th, 2011

It was great working with you again . When the people started coming in, I got the greatest feeling I have had in a while to see all of the people that were coming to the event that Linda and I organized and put together. I have always enjoyed giving to other people, this by far is this biggest thing I have done to give back to people. The program, from what I hear, was really great.  Your part of the presentation helped everyone put things into perspective and was very informative. I wish we would have got to talk more before or after the game, but things were a little chaotic. I really enjoyed meeting your son. He was very nice and helped out setting up the tables for the program. We have your CD’s until you tell us what you want us to do with them. I look forward to seeing you. Did PAACI talk to you about doing a symposium in the fall or do we need to keep on them? We will be there in Cincinatti to help you out as well. Anytime you need us to help with anything and we are available, we will be there.

Overcoming Adversity Presentation prior to Indiana Pacer Game A Success

Sunday, April 17th, 2011

Sent: Sun, April 10, 2011 6:51:42 AM

Subject: speech

Thank you, thank you for all you did to make our PD/Pacer event a huge success.  We have gotten nothing but positive comments about your speech and the event in general.

Your son was such a big help Friday. Nice boy, takes after DAD.  If we can help you with anything in the future, just give us a call.

Linda and Mary

Hope sees the invisible, feels the intangible and achieves the impossible.

The Mouse Story: Ain’t Dead Yet

Sunday, April 3rd, 2011

Inspirational Speech on Positively Living with Parkinsons

Saturday, April 2nd, 2011

Would love to speak to your group also.

John Baumann, Attorney
Proud Person with Parkinsons

Houston Area Parkinson Society
Annual Educational Symposium
Saturday, April 30, 2011

Houston Area Parkinson Society invites you to attend its 2011 Annual Educational Symposium, “Moving Forward with Parkinson’s: living until a cure is found.” This year’s event will review recent advances in Parkinson’s disease (PD) research and offer helpful, practical information for managing the challenges of living with PD.

Keynote Speaker
John Baumann

An inspirational talk providing insights as to why many care receivers and their families have a difficult time adjusting to life-changing illness, the power of having a positive attitude and the damaging effect of negativity.

8:30 Check-in and Continental Breakfast
9:00 Biomarkers and Genetics
10:00 Break
10:15 Morning Breakout Session
11:15 Break
11:30 Lunch with Keynote Speaker
12:30 Break
12:45 Nutrition
2:15 Break
2:30 Afternoon Breakout Session
3:30 Adjourn


Full Audience Sessions
Biomarkers and Genetics
Dr. Joseph Jankovic and Sohini Chowdhury

This two part session on Parkinson’s disease research will focus on recent advances in biomarkers and
genetics. Part one will focus on defining biomarkers and explaining their utility in drug development. Part two will focus on the important role genetic factors play in the pathogenesis of PD and guidelines on how to interpret various genetic tests.

Morning Breakout Sessions
Deep Brain Stimulation
Dr. Richard K. Simpson and Dr. Mya C. Schiess

Learn more about Deep Brain Stimulation (DBS) as an effective form of treatment for some people with
Parkinson’s disease. This session will provide a review of current research on DBS and discuss details of the surgical procedure. Learn how DBS works, who makes a good surgical candidate, which symptoms benefit and for how long, what outcomes to realistically expect and what recent scientific studies reveal about DBS versus best medical management including, benefits and risks.

When you think exercise—think BIG
Betty MacNeill, PT, DPT

There’s no question that everyone needs to exercise, but the added challenge for individuals with Parkinson’s
disease is to decide how much and what kind. Research in this area is on the rise and new guidelines and exercise strategies are emerging. Although many details are still missing, the bottom line is that exercise involving novel movements and physical challenges lead to more benefits in the long run. This session will explore some of these new approaches and provide practice experience for learning
movements associated with the LSVT-BIG® exercise protocol.

Bridging the communication divide: strategies
and treatment options
Terri Haight, MA, CCC-SLP

Studies show 50%-89% of those with Parkinson’s disease experience speech and voice disorders, but only a small percentage receive treatment. This course will discuss low-tech strategies and speech treatment options to improve both communication effectiveness and the communication environment. This session will provide an overview of the components of LSVT®, the gold standard of voice treatment for individuals with PD.

Jackie Nielsen, MS, RD, CDE
This session will highlight nutrition-related concerns and tips to improve quality of life. Learn how Parkinson’s affects the GI tract, how medications effect nutrition and health, and which supplements may or may not help.

Afternoon Breakout Sessions
Sleep well, live well. Understanding the
connection between sleep and PD
Dr. Mya C. Schiess.

Sleep related problems are common in Parkinson’s disease and if untreated, can make living with PD more
difficult. This session will include discussion of good sleep habits along with sleep problems commonly
associated with PD including insomnia, excessive daytime sleepiness, periodic limb movement disorder,
restless leg syndrome, dream enactment or REM sleep behavior disorder and sleep apnea, as well as effective therapies to maintain a healthy sleep cycle.

Love and other drugs in PD: what you need
to know but can’t learn from the movies
Dr. Joohi Jimenez-Shahed

This session will review medications commonly used to treat Parkinson’s disease, discuss treatment goals and approaches, and will provide pointers on effective communication with physicians regarding medication issues. Get the latest information on long acting dopamine agonists; the widely reported Sinemet shortage and Stalevo warnings; and what patients should know about benefits and potential side effects of PD drugs.

Viewing your health through your eyes
Dr. Rosa Tang

Learn about common and special eye problems related to Parkinson’s disease and available treatment options. This session will include information on blurred and double vision, dry eyes, eye movement, visuo-spacial orientation and more. Find out how these issues are different from age-related eye changes, how to
appropriately communicate vision changes and how to seek specialized care for PD specific eye disorders.