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Comment on Bulgarian Fan by John

John — Fri, 03 Feb 2012 17:07:06 +0000

I watched the video, thank you for sharing. I am fairly newly diagnosed (02/11) though symptoms started in 2004. I have been a nurse and health educator in the past. I feel that much of the medical community knows next to nothing about PD. I have a lot of hurdles now but would like to come up with a way to educate the medical and general community about this disease.

My MD will no longer allow me to work as a nurse due to cognitive changes. At first I did not agree with him and tried to work, now I see that it was not in the best interest of patients. Do you have any ideas of how or where to start?

The other problem I see is a big one and I have personal experience with it and that is the financial side. I am a single mother without a job, no health insurance, I have applied for disability, at this point is in the appeal process. I am a year behind on my mortgage, fortunately my mortgage company has not yet put me into foreclosure due to the circumstances.

I know I am not the only person in this position. I think the PD community should come together and somehow form a fund not just for research but also emergency funding for people in similar situations to my own. A way to help bridge the gap until their disability funds are available.

I could have kept insurance from my previous employer but did not have the money to continue it. We have food in the house due to the generosity of friends. These are some of the hurdles that I have to overcome so that I can then attempt to fulfill what I see as a valuable future purpose.

Comment on Victory Summit by Aleksey Graboviy

Aleksey Graboviy — Wed, 14 Dec 2011 15:49:01 +0000

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Comment on Contact Me by Bruce

Bruce — Mon, 21 Nov 2011 19:54:10 +0000

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Comment on Inspirational Speaker Resume by acuarela

acuarela — Tue, 15 Nov 2011 18:55:49 +0000

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