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January 17, 2012

1

Bulgarian Fan

Maria Kassova has sent you a message.
Date: 1/09/2012
Subject: RE: John, I only just saw your video…and I am so moved and touched. I currently write a book on confidence and one of the key premises of…
Hi John, happy, successful and prosperous 2012! May it bring you more strength, ideas, opportunities to change lives! May you also experience many happy moments with your family, friends, with your own higher self.

It is truly kind of you to drop me this line…I will no doubt stay in touch and follow you, and use some of your clips to inspire others. If you have another group on LinkedIn that you are active into – please let me know. I would like to join it.

Learning about the courage and strength of people like you, who use the cards they are dealt with in the best possible way, is food for my soul. It keeps me going, and I want to spread that message around….so we can live with a larger sense of possibilities, not fear.

A big hug from your Bulgarian fan, and human being.

Maria Kassova

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  1. Feb 3 2012

    I watched the video, thank you for sharing. I am fairly newly diagnosed (02/11) though symptoms started in 2004. I have been a nurse and health educator in the past. I feel that much of the medical community knows next to nothing about PD. I have a lot of hurdles now but would like to come up with a way to educate the medical and general community about this disease.

    My MD will no longer allow me to work as a nurse due to cognitive changes. At first I did not agree with him and tried to work, now I see that it was not in the best interest of patients. Do you have any ideas of how or where to start?

    The other problem I see is a big one and I have personal experience with it and that is the financial side. I am a single mother without a job, no health insurance, I have applied for disability, at this point is in the appeal process. I am a year behind on my mortgage, fortunately my mortgage company has not yet put me into foreclosure due to the circumstances.

    I know I am not the only person in this position. I think the PD community should come together and somehow form a fund not just for research but also emergency funding for people in similar situations to my own. A way to help bridge the gap until their disability funds are available.

    I could have kept insurance from my previous employer but did not have the money to continue it. We have food in the house due to the generosity of friends. These are some of the hurdles that I have to overcome so that I can then attempt to fulfill what I see as a valuable future purpose.

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