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April 2, 2011

12

Inspirational Speech on Positively Living with Parkinsons

Would love to speak to your group also.

John Baumann, Attorney
TheInspiringEsquire.com
PDSpeaker.com
Proud Person with Parkinsons
502-262-3300

Houston Area Parkinson Society
Annual Educational Symposium
Saturday, April 30, 2011

Houston Area Parkinson Society invites you to attend its 2011 Annual Educational Symposium, “Moving Forward with Parkinson’s: living until a cure is found.” This year’s event will review recent advances in Parkinson’s disease (PD) research and offer helpful, practical information for managing the challenges of living with PD.

Keynote Speaker
John Baumann

An inspirational talk providing insights as to why many care receivers and their families have a difficult time adjusting to life-changing illness, the power of having a positive attitude and the damaging effect of negativity.

MOVING FORWARD WITH PARKINSON’S:
LIVING UNTIL A CURE IS FOUND
8:30 Check-in and Continental Breakfast
9:00 Biomarkers and Genetics
10:00 Break
10:15 Morning Breakout Session
11:15 Break
11:30 Lunch with Keynote Speaker
12:30 Break
12:45 Nutrition
2:15 Break
2:30 Afternoon Breakout Session
3:30 Adjourn

MOVING FORWARD WITH PARKINSON’S: LIVING UNTIL A CURE IS FOUND

Full Audience Sessions
Biomarkers and Genetics
Dr. Joseph Jankovic and Sohini Chowdhury

This two part session on Parkinson’s disease research will focus on recent advances in biomarkers and
genetics. Part one will focus on defining biomarkers and explaining their utility in drug development. Part two will focus on the important role genetic factors play in the pathogenesis of PD and guidelines on how to interpret various genetic tests.

Morning Breakout Sessions
Deep Brain Stimulation
Dr. Richard K. Simpson and Dr. Mya C. Schiess

Learn more about Deep Brain Stimulation (DBS) as an effective form of treatment for some people with
Parkinson’s disease. This session will provide a review of current research on DBS and discuss details of the surgical procedure. Learn how DBS works, who makes a good surgical candidate, which symptoms benefit and for how long, what outcomes to realistically expect and what recent scientific studies reveal about DBS versus best medical management including, benefits and risks.

When you think exercise—think BIG
Betty MacNeill, PT, DPT

There’s no question that everyone needs to exercise, but the added challenge for individuals with Parkinson’s
disease is to decide how much and what kind. Research in this area is on the rise and new guidelines and exercise strategies are emerging. Although many details are still missing, the bottom line is that exercise involving novel movements and physical challenges lead to more benefits in the long run. This session will explore some of these new approaches and provide practice experience for learning
movements associated with the LSVT-BIG® exercise protocol.

Bridging the communication divide: strategies
and treatment options
Terri Haight, MA, CCC-SLP

Studies show 50%-89% of those with Parkinson’s disease experience speech and voice disorders, but only a small percentage receive treatment. This course will discuss low-tech strategies and speech treatment options to improve both communication effectiveness and the communication environment. This session will provide an overview of the components of LSVT®, the gold standard of voice treatment for individuals with PD.

Nutrition
Jackie Nielsen, MS, RD, CDE
This session will highlight nutrition-related concerns and tips to improve quality of life. Learn how Parkinson’s affects the GI tract, how medications effect nutrition and health, and which supplements may or may not help.

Afternoon Breakout Sessions
Sleep well, live well. Understanding the
connection between sleep and PD
Dr. Mya C. Schiess.

Sleep related problems are common in Parkinson’s disease and if untreated, can make living with PD more
difficult. This session will include discussion of good sleep habits along with sleep problems commonly
associated with PD including insomnia, excessive daytime sleepiness, periodic limb movement disorder,
restless leg syndrome, dream enactment or REM sleep behavior disorder and sleep apnea, as well as effective therapies to maintain a healthy sleep cycle.

Love and other drugs in PD: what you need
to know but can’t learn from the movies
Dr. Joohi Jimenez-Shahed

This session will review medications commonly used to treat Parkinson’s disease, discuss treatment goals and approaches, and will provide pointers on effective communication with physicians regarding medication issues. Get the latest information on long acting dopamine agonists; the widely reported Sinemet shortage and Stalevo warnings; and what patients should know about benefits and potential side effects of PD drugs.

Viewing your health through your eyes
Dr. Rosa Tang

Learn about common and special eye problems related to Parkinson’s disease and available treatment options. This session will include information on blurred and double vision, dry eyes, eye movement, visuo-spacial orientation and more. Find out how these issues are different from age-related eye changes, how to
appropriately communicate vision changes and how to seek specialized care for PD specific eye disorders.

12 Comments Post a comment
  1. Katie Karrer
    Apr 21 2011

    It is so inspiring to hear your outlook on life. You can really sense that you live every day to the fullest, making the most of every opportunity.

  2. Christopher O'Shea
    Apr 25 2011

    I love the way in which you really hammer into your speech about cherishing the life you have because we are still alive and can make a difference in the world. I completely agree with he attitude factor in a person’s life, that a positive attitude can go a long way throughout someone’s life. Charity and helping other’s out has been a large part of my life so far, thanks to my Mom, and in the beginning when you showed the appreciation for the care givers means a lot to them. Lastly, telling the stories of your daughter and the mouse where great in this inspiring talk because people always relate to a speech better when real life examples are given to convey a message.

  3. Thomas Thompson
    Apr 28 2011

    I liked how you took into account of the family members that are going through this. On how they need to cherish the time they have with them still. I liked how you really hammered home that you need to look at life positively while going through this rough time. Do the things that you still want to while you can. To do a bucket list and do the things that you want. To take the precious time you have and spend it wisely, with family and do the things that you want to. It was very inspiring to try and get people to realize this, and that it can be taken into account with any disease, how people need to cherish every living moment that they have.

  4. Taylor Distler
    Apr 28 2011

    First off, great speech! It was very motivating to hear all your examples and perspectives on life. My favorite example was the Gary Allen song and about life is a journey. We should focus on the present and not the end of life. If we become too focused on the long hall, life will pass us by.

  5. Aurelia Fenouil
    Apr 28 2011

    This testimony provides such an intimate insight into dealing with Parkinsons. Seeing how positive you are really inspires me in all walks of life. It is nice to see that although you have this illness, you don’t let it conquer you.

  6. Jason Grilliot
    Apr 28 2011

    This speech is incredibly inspirational. The use of real life stories are a great way to convey your message, because it allows the audience to connect in a way that is much more than just hearing. I like the way you spoke about your daughters situation, because that really embedded the idea that there is always a good side to every situation, no matter how hard you have to look, you can always find it. Also, I like your idea of making a bucket list, my uncle did the same thing when he was diagnosed with lung cancer. It is a great thing to have, because it allows a person to not only getting their mind off of their own situation but has them persuing something that feel like a monumental accomplishment, and this instills the placebo effect, of which you spoke. Finally I think it was a great idea for a person to want to “leave a legacy” and help others out. Getting involved in other people’s lives and affecting them in a positive manner can make a person feel so much better about themselves. This allows a person to be in a positive frame of mind and will keep all their surrounding loved ones in that same positive frame of mind and will help them to cherish every moment spent with that person, due to their infectious positive attitude.

  7. Amy Su
    Apr 28 2011

    A very inspiring speech to encourage people not to take things for granted. Some people go through life not realizing what is important, this speech reminds everyone to slow down and make the most of life.

  8. Logan Gholson
    Apr 28 2011

    You brought up a very interesting point that you should be appreciative of the doctors even if they give you bad news because they did their job and found out what was wrong with you. As much as you don’t want to hear the bad news the doctors don’t want to give it either and Im sure they never hear thank you when they give bad news to someone.

  9. Yan Jin
    Apr 28 2011

    Wonderful speech!!! This is the first time I heard about this kind story and made me think a lot about life.

  10. Wesley
    Apr 28 2011

    Great movie! I really enjoyed the speech, and liked the story about the mouse, “if it ain’t dead yet, it it ain’t gunna die.” Your attitude about life reflects this story because your remain positive; if you aint dead yet, live life to the fulliest!

  11. May 10 2011

    Howdy, I genuinely apprecitate your insights on being a inspirational speaker. I read many blogs in the business but, I’ve to say the majority are garbage. It’s nice to see that your able to write some thing of value on this subject. As I’m certain you know there is lots of so referred to as key note speakers “experts” but, I actually wish much more people took this seriously simply because, becoming key note speakers truely does effect peoples lives and has a massive impact on how they really feel. feel how an individual feels on the inside will be the most vital thing in life more so than income or fame.

  12. Mar 19 2012

    I enjoyed your insightful article. good work

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